Visit BSA's new blog. It'll tell you something about the BSA – what we do, how we do it, stories we encounter, stories that move us. Perhaps it will also make us think about the everyday stuff we do, take for granted, and don’t realise we never told anyone we’re doing them.
The recent departure of BSA’s fundraiser got me thinking about fundraising. I have heard it said that charity fundraising, in our current economic climate, is like running up a steep hill with a sack of coal on your shoulders.
However, raising money for stammering adds an extra sack. Why is this I wonder?
Awareness and understanding of stammering are improving but are still at a relatively low level. The myths about stammering seem to be deep rooted and widespread. This being the case it is not surprising that empathy for stammerers may be lacking and donations hard to generate. BSA works tirelessly to improve awareness and understanding of stammering and dispel the myths but it can only do so much with its limited resources.
My New Year’s wish is for BSA and the stammering community to work together to educate people about stammering and help remove the extra sack of coal from the shoulders of BSA’s new fundraiser. Together we can move mountains.
Yesterday was busy but brilliant.
We started the day with a visit from our Trustee Tim who got up really early to make it to the office from rural Lincolnshire. We got a presentation from a software supplier and trainer as we need to upgrade our accounts package to SAGE. At the moment we're using an MS Accounts database which I set up 15 (!) years ago, together with lots of pencil lead and brainpower of our volunteer accountant John Perkins. John has been doing our books for 15 years now but he is making ominous noises about retiring so modernity is thrust upon us. Also, with cashflow being 'interesting', it helps to know more about where the money is coming from, is going to, and how much there is at any given moment! Lots to learn, and a busy January, no doubt. If you're an accountant with some spare time, we may wish to hear from you!
Rushing off for a lunchtime meeting at the amazing Lloyd's Building in the City. In 25 years of living in London I've never once been inside. We have been nominated for a charity grant from the Lloyd's Market Charity Awards by Steve Gutteridge who works in the market - £2,000. Thank you, Steve! And not just for the £££, but for an excellent meeting on the 11th floor, with amazing views over the City, in an iconic building, featuring a wide variety of charities, all doing quite amazing work. What more could one wish for? And if you've ever wondered, yes, they DID reconstruct an 18th century stately room on the 11th floor! The nibbles were also quite excellent. Though the ride in the outside lift was a tad scary....
A quick cab ride (a rare luxury in itself) to Canary Wharf where Iain Wilkie and I were meeting with KPMG to see if they could be interested in signing up for the Employers Stammering Network. Richard Murray has been quietly beavering away to raise the issue of stammering at KPMG and as a result we got a whole hour with him and Tony Cates, KPMG UK's Head of Audit. You can't get more senior than that, and we spent the hour talking about stammering. There's very little that's more convincing than authenticity and openness about your stammer, and Richard's description of his own journey, and his leadership, really made a big difference. I'm hopeful we have a new Founder member.
Good opportunity for a quick catchup with Iain after the meeting and then off to Aldgate for a meeting of the working party on Quality Improvement (QI) of the East London NHS Foundation Trust. Like all NHS Trusts, ELFT has to find 4% 'efficiency savings' each year and after 4 years, that's 17% less than the Trust would normally have. There's no more fat to trim and the choice is between cutting services or saving money by improving the way we do things. The QI programme is in full swing with an ambitious target of being the best provider in England by 2020. But if we're going to be the best healthcare provider by 2020, surely the Council of Governor also needs to improve to be the best CoG in England by 2020? Well, that's what I asked myself - which is why I am now lumbered with being member of this working party! Getting home around 8pm, tired but happy. Followed my sister's advice of feet up, glass of wine, and some music....
One of two newly elected BSA trustees, Patrick Campbell blogs here about his initial impressions. He's off to a busy start!
Norbert greets me bright eyed and smiling at 11am on a rainy Saturday morning in East London. It is my first meeting as a trustee after being elected and my first time seeing the new BSA offices. BSA HQ certainly won't be winning any office design competitions anytime soon but the small office is crammed full of stammering: books, DVDs, wristbands, motivational posters and t-shirts.
I meet the other new trustee, Jennifer (an SLT from Manchester) and Norbert begins to talk Jennifer and me through the stammering ropes: from a brief history of the BSA to advice for appearing on TV, via charity trust funding. It was an educational and surprisingly interesting three hour lay of the UK stammering landscape. My first General Committee meeting as trustee is in one week's time and without this talk it would have been bamboozling.
The General Committee meeting was perhaps saved from being bamboozling but it was still nevertheless confusing. I walk in as Ian Wilkie is outlining the Employers Stammering Network (ESN) business plan at a preliminary meeting. Ian Wilkie is a senior partner at EY (formerly Ernst & Young). Also at the table are the BSA stalwarts: Norbert and Colin Marsh (40y experience of the BSA between them). Then there is John Evans, BSA chair, and Tim Fell, Managing Director and founder of a major turfing company. I join the table with a welcoming nod from John. Ian outlines his hopes to transform the UK's workplace view on stammering – a man with small aims! Ian's personal story is rather inspiring, in brief he says he realised what you have to say is more important than how you say it in life. Many of you heard it at the Glasgow conference (and if not you can find a great interview with him here: http://www.bbc.co.uk/news/business-22465298).
After a nuanced discussion of the current ability to expand the ESN to more companies without overstretching, Ian bids us farewell. The real Committee meeting is going to begin. Paul Blythe and Jennifer walk in and take their seats. The board review minutes from previous meetings to agree their accuracy. I incorrectly try to second the minutes of a meeting I didn't attend – you can't say I'm not keen! I successfully second the minutes of a meeting I did attend and we're off in to the real meat of the day’s talks.
The effect of the recent cutbacks is reviewed. The finances are still worrisome but stable. During the discussion, the air of the room is palpably tense. The room seems to halve in size and the temperature rises by 5 degrees as money dominates the talks. A bead of sweat rolls off my forehead. Forward progress requires spending but spending risks insolvency – what is the right balance? A balance is agreed and discussion moves on to membership strategies and a bit more on the ESN. The meeting draws to a close after five hours. My input has been limited but it will hopefully grow as I learn and understand more. I also accepted the role of Minutes Secretary. Norbert says it's not a concrete role but merely a formality of the constitution. Smiles all around from the other trustees… I hope it's not some sort of BSA initiation joke, like sending the intern to the shop for a long wait.
Well, that was ISAD2014. This year we didn't have a set piece. Or massive national TV coverage.
But what we did have were many, many people who stammer speaking out, telling the world "You know what? I stammer. It's not always easy, but it's not something I'm ashamed of".
There were so many examples but inspirational highlights for me were the moments when people did something they'd never have dreamt of doing. There was Arthur's journey to appearing in the Morpeth Herald. Kane's talk at his school and his fantastic information sheet. There was Katie's school assembly piece. Nisar running himself into the ground talking to anyone who will listen. The children and young people willing to speak to camera about what stammering means to them. All these pieces of sheer guts and courage, all these big cracks in that Wall of Silence that far too often surrounds stammering.
The BSA Closed Facebook was once again instrumental in offering support, and in cheering people on. Videos were posted and feelings were shared.
And then the larger events - huge thanks to Julia, our fundraiser, who spent 14 hours at Liverpool Street Station and to everyone who came along to help with our ISAD collection; huge thanks to my co-Chair of the Employers Stammering Network Iain Wilkie who took a day's leave to travel to Leicester and talk to Remploy - and the Remploy team who put on the awareness raising event. Many thanks to the team at Whittington Barracks and the Defence Medical Services for bringing together staff from all branches of the armed forces to hear about stammering - it's heartening to see the development of the Defence Stammering Network under Jimmy's strong leadership.
How do we tell the world about stammering? Times are tough, staff is short, and money is tight (please check out and share our ISAD Appeal!). But even if it weren't, the best way to spread awareness is for all of us, in our own way, to tell the world. That can be done via BBC Stoke as Karen did - that's a Big Step! But it can also be done through talking about it to our families and loved ones, or at work, or by posting an update on our Facebook profile. People who stammer talking about their own stammering, how it affects them and what others can do to help - that is authenticity that can't be bought with any kind of advertising budget. To everyone who spoke up yesterday, in whatever manner you did it, thank you very much!
And here we are, 1 October. That came round rather sooner than I thought it would.
The cuts have taken effect and today I'm on my own in the office. Time to think, and to finish my presentation tomorrow at Citigroup.
Or perhaps not? A call about mentioning stammering in your application, and a parent of a little girl who's started to stammer. And an SLT updating her service's address. Limiting helpline hours doesn't work, they just call the office line! The meter reader came round, looking for the key to the meter cupboard (gone AWOL - the key, not the cupboard), and a potential funder wanted information about how many enquiries we get from Essex - asap, please. Been quite busy, really. The bank manager left a message and wants to talk with me (uh-oh) - I think it's just an unusual transaction they want to query. Time to make lists. Haven't looked at my emails at all and it's already past lunchtime.
It IS possible to get through normal, expected things. But I'm worried about the unexpected, and about loss of opportunity. I've been asked to do a Skype presentation in November - is this crucial? ITV are coming back trying to organise a TV appearance on the morning sofa. Do I have time for that? I've got an email from someone who lays out her approach to stammering therapy in great detail; it's quite interesting, you can feel there's some insights around the edge that could lead to more. Do I have time for that? "Norbert, will you write something about the cuts for our magazine?" Do I have time for that?
We've had such lovely feedback and so many offers to help out and volunteer - thank you everyone. Bear with us, I need some space, we all at BSA Towers need some space to see how things settle around us and see what help we need. The Facebook group is off to a splendid start, with people volunteering to moderate.
Even on a lonely day in the office (I really need to get some speakers for my PC) I firmly believe we've taken the right decision - though I may slightly waver in my conviction next payday. After yet another helpline call from a Mum, this time from Walthamstow, we just don't have the right to risk BSA and all of our services on the assumption that our luck will always hold.
Well. That was powerful and emotional stuff.
I liked how the programme made it clear how debilitating a severe stammer can be. How limiting. How distressing. There's no such thing as 'just a stammer'. "I'd rather lose a limb" says Vicky Croft who lost her fluency following a stroke only eight months ago when before she'd been 'the life and soul of every party'.
It is so clear that change can only come when there is the courage to make yourself vulnerable. To look at yourself just the way you are, and let others see you just like that. The temptation to hide, to give in to fear can be overwhelming. There's great risk, personal risk. But clearly also great mutual support. You're not alone, not on a McGuire course, nor in the stammering community as a whole, should you choose a different path.
Talking, as Musharaf says, means to show the world who you are - this is the time in his life where he finds his own path, carves out his own niche and discovers with others who he is and who he wishes to be. But when speaking is hard, how can you do that? If you can't share of yourself with the world, where are you going to fit? We saw powerful emotions from loved ones and family worried about limited futures.
As always, and perhaps inevitably, the programme didn't focus on the hard work after the course. Maintaining the technique, keeping up the courage to change and be vulnerable, takes a lot of effort and a lot of support. I often felt it is the post-course support that marks approaches like the McGuire Programme and which is crucial to their success.
Accepting stammering, as was said elsewhere on this site, doesn't mean resignation, and it doesn't mean 'accepting the unacceptable'. If I were Musharaf, I'd find my speechlessness unacceptable. The only question is how to go about changing it.
Stammering shapes us, depending on our temperament, our experiences and our upbringing. We all arrive at this point, the point of "something's got to give, something has to change" in a different mould. And so there's no one size fits all. As a person who stammers, McGuire isn't for me. That's down to my temperament, and perhaps (if I'm honest) also to the luxury of no longer being a severe stammerer. But then, vocal fold management, or block modification, soft onset or mindfulness aren't really for me, either. However, speaking both personally, and as someone who's responsible for the UK's charity for stammering, I'm glad the option is out there for those like Musharaf to make the most of it.